Juanita,
I think you are really brave to do that. I know a few people who refused to wear it, and they are right back in the mess they started out in. Don't give up. I have to take a new medicine that scares me, and I put it off for two years. By the time I started this fall, I was able to function normally about 3 hours per day. Out of desperation, I started taking it, and I have been able to have a normal day again. It's like a miracle. I was so non-functioning. The worst part is that I kept telling myself that I was just being lazy. And it was this condition. When all of this started and I was told that I would be on disability eventually, I told myself that I was going to live a normal life no matter what and for the most part, I have really fought to do that. But I have had to work with a neurologist closely since I was diagnosed. I am lucky to have had great doctors. It sounds like you are lucky they found your apnea before something really bad happened.
Dear Jaunita,
Cataplexy is a seizure disorder that may or may not be a condition that is associated with narcolepsy. It can range from so mild that nobody knows they even have it to profound. A decent description is when you are daydreaming, but you lose time... or you are eating and you don't realize that you just ate a whole watermelon. It can be staring into space, or automatic behavior. (in my opinion.) And what is going on is that you are taking "mini-naps". There are drugs to treat this specifically, as well as narcolepsy, which is the major problem I have. Over the years, my conditions have become degenerative. The reason for this is partially genetic, and also stress.
Apnea is usually unrelated, from my understanding, and if you use a c-pap, (which I am also familiar with), it can save your life, relationships, and ability to function normally. Has it helped you? What is the cause of your apnea?
I am 52 yrs. old. I've been married for 33 yrs. and we have 1 daughter & 2 granddaughters. I'm the only one in my family who has been diagnosed with sleep apnea.
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I think you are really brave to do that. I know a few people who refused to wear it, and they are right back in the mess they started out in. Don't give up. I have to take a new medicine that scares me, and I put it off for two years. By the time I started this fall, I was able to function normally about 3 hours per day. Out of desperation, I started taking it, and I have been able to have a normal day again. It's like a miracle. I was so non-functioning. The worst part is that I kept telling myself that I was just being lazy. And it was this condition. When all of this started and I was told that I would be on disability eventually, I told myself that I was going to live a normal life no matter what and for the most part, I have really fought to do that. But I have had to work with a neurologist closely since I was diagnosed. I am lucky to have had great doctors. It sounds like you are lucky they found your apnea before something really bad happened.
Cataplexy is a seizure disorder that may or may not be a condition that is associated with narcolepsy. It can range from so mild that nobody knows they even have it to profound. A decent description is when you are daydreaming, but you lose time... or you are eating and you don't realize that you just ate a whole watermelon. It can be staring into space, or automatic behavior. (in my opinion.) And what is going on is that you are taking "mini-naps". There are drugs to treat this specifically, as well as narcolepsy, which is the major problem I have. Over the years, my conditions have become degenerative. The reason for this is partially genetic, and also stress.
Apnea is usually unrelated, from my understanding, and if you use a c-pap, (which I am also familiar with), it can save your life, relationships, and ability to function normally. Has it helped you? What is the cause of your apnea?