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Krissie
  • Female
  • Berlin, NJ
  • United States
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Latest Activity

August 24

Profile Information

How many hours of sleep do you get at night?
8 hours
About Me:
I am a young, smart, sassy and a very active 30yr. old professional, whom is funny & witty. (at least I believe I am)

I feel some what lost, not depressed but kind of like no one is listening or understands my disorder. You are suppose to have support from your friends, family and co-workers. The only one who is there for me is my wonderful boyfriend but he does not fully understand and for a while this disorder took a toll on his emotions. I am looking for similar people who their whole life pushed themselves thinking: is it me? am I just that lazy or what is wrong with me am I a hypochondriac but than not a condition. I have questions that medical sites can’t answer. I want to make friends, be guided or give guidance where ever I can.

P.S. Hi everyone I have narcolepsy 

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At 10:51pm on August 24, 2009, Kelly P said…
Hey i totally know how u feel... everyone thinks im crazy!!! I dont even think my doctor believes me or wants to help. ive been having the hardest time getting appts, my scripts/meds, and getting the doctor to listen and help me!!! i cant wake up in the morning. all my friends get mad at me and dont understand me, or believe me. all my relationships have gone down the drain bc my bf's would rather fight w me then talk and try to figure things out together. ur lucky u have a good bf. im here to talk whenever u want, or bitch, rant, rave, whatev works haha. AND , you live really close to me !!! maybe we can help ea.other out... hope to hear from ya soon!!! take care:)
 
 

Latest Activity

Michelle added a discussion
I recently found Xyrem and it is the only sleep aid that works for me consistantly. I know that it is prescribed for narcolepsy but many with ME/CFS are now using it as well. Mr Doctor prescribed the free sample and now I am looking patient assist...
21 hours ago
oh i know i just went to see a new doc and he wants me to change all my meds and only gave me 20 pills of 5mg ambien for 2 months, he was a jerk and so i will fire him and look else where. it took me a long time to even start to sleep now this new...
yesterday
I've noticed people have mixed feelings about Ambien...I'm one of them. One time I took it, and was out for a good 8 hours...no problem. My mother had it, and it only worked for 4 hours for her. My Dad (since deceased) had Sonata, and since I'd lo...
yesterday
I still haven't found the right med(s)...or I'll become immune to the effects, and need to figure something else out! It's exhausting! Then someone will tell me about something that works for them...I'll ask a few questions about side effects and ...
yesterday
i am having trouble with the ambien not working but i dont know of anything else that has worked on me i been on so many things!!
yesterday
i am the same way . i had a nervous breakdown 9 years ago now and i have had to be on 1 mg. lor. and 5 mg. plus seraqual. i hate it but if i dont take it i do not sleep. i wantthe sleep not the pills but i dont know of any other way to get sleep.i...
yesterday
i always knew that i good 8 hours of night sleep will help to to feel better and to look better that why sleep 8 hours is so important good sleeping habits.
on Wednesday
what does xyrem do? does it make you go to sleep and then help you wake up
November 21

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