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Kelly P
  • Female
  • Clementon, NJ
  • United States
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I CANT WAKE UP! no matter what! please help!
11 Replies

Started this discussion. Last reply by Kelly P Oct 22.

 

Kelly ! ! !

Latest Activity

November 19
Kelly P received a gift from Audra Forler
From the Gift Store
November 19
Well when I take the Nuvigil sometimes it helps me to stay awake but like today i just sleep right through it so i still have some adderall left so I just took it to help me to stay awake. Every morning I have to get up to get my kids ready for sc...
November 19
Hi Audra! I never had Nuvigil and hadn't heard of it until I started trying to find others. I am on Provigil and it didn't work the greatest for me, but my main issue is with waking, so the addition of Xyrem -- only started last week - has been a ...
November 18
Kelly P thanks so much for this awesome page...I have just joined and I already feel less alone
November 18
Hello everyone...so I see that everyone is talking about the drug Xyrem...is it better that Nuvigil...or is Provigil better...I really am not having that much sucess with Nuvigil
November 18
Kelly P replied to Donna Talarico's discussion 'Xyrem?' in the group Narcolepsy
Hiii Donna !!!! thnxx for joinin !!! and thnxx for lookin at my site & postin it =) glad yaa liked it !!! i actually need to update some things on there. lol. i have not tried xyrem yet so i cant respond but, i am goin to check out your site :) ha...
November 18
November 18
Kelly P and Donna Talarico are now friends
November 18
Hi Scott! Thanks for following me on Twitter. Glad you joined this group, too. Have you asked your doctor for samples? My co-pay is a little more than I'd like it to be, so he gives me samples to stretch further between refills. But I know without...
November 16
I used Provigil for about a year and it changed my life. Then I lost my insurance and I lost my meds. Now I just deal.
November 16
November 12
November 12
provigil worked 3 days for mee. Nuvigil seemed to last a lil longer & be the same thing but then it had no effect.... it wasnt until i started takin effexor w/ the nuvigil it seems to be more effective & lastin longer than other meds. idk if thatl...
November 12
haha, dont sleep till dec !!! lol. my dr. wanted me to do another sleep study & a daytime wakefulness test.... she said if i did poorly, she was taking my license away. so i refused, cancelled the test. no way in hell is she takin my license!!! i...
November 12
Kelly P left a comment for Kath
November 12

Profile Information

How many hours of sleep do you get at night?
8 hours
About Me:
Hours of sleep a night?? i can sleep forever. lol. Usually between 5-8... sometimes i get more. Weekends i get wayyy more sleep. What a question to ask huh?! lol.


About mee: Narcolepsy w/ cataplexy
Website:
http://www.kellysleepytales.com

Comment Wall (10 comments)

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At 9:29pm on November 19, 2009, Audra Forler said…
Kelly I love the statement you made on August 26th about how people tell you if you really wanted to stay awake you would! Thats awesome I wish I could get my family to read this...do you have a good support system with your family? I do a little. Sometimes they are considerate but other times they just stay mad at me.
At 9:22pm on November 19, 2009, Audra Forler gave Kelly P a gift
From the Gift Store
At 7:29pm on November 4, 2009, Kath said…
Hey Kelly,
Just went through a super sleepy October
Halloween had a 102 temp
Slept through my favorite holiday
Anyway, working on some attitude stuff
Am grate

ful, to report SSA application I started in December of 2000, is being delt with Sometimes it is just nice to know that I am NOT the full problem
New lawyers and judge are interested to know why my case was handled so poorly
I'm just glad to know it wasn't all in my head

Peace!
Kath
At 7:30pm on October 31, 2009, lauren said…
Pretty good! Thanks! I had candy for breakfast and candy for lunch, so its looking like a great halloween for me. I made costumes for myself (a deer) my boyfriend (a mountain man) and my dog (a dinosaur) so we are all looking pretty fabulous, I must say. Hope your halloween is great!

Oh and I like your website. There are not a whole lot of people with narcolepsy that are so open to talking about it.

Have a fun day
At 6:24pm on October 8, 2009, Rob Bixler said…
kelly your right , theres definintly alot of angry old hens in DS chicken coupe
At 5:27pm on October 8, 2009, Rob Bixler said…
hey Jersey girl, not much going on here in Indiana,as for me ,not much either.
same old shit. works down to 32hrs. and i am going thru withdraw, because i am a workcoholic. keeps my narc in check,and my cataplexy,don't no what to do with my extra time , so i sleep it away,might as well be pissing into a head wind,they are both a wast of time, but what can you do.life to short to worry about it.hey if like music and i no you do my friend one of the few i have left, had a ska /reggae band and alittle freestyle thrown in for effect.you might digg them ,i don't care for some of it, but all in all they were pretty good. they were big around here,even made 3 or 4 cds, they were called struttrain google them up and see what you think,they made a cd under a different name in NYC they were call unlikley alibi,www.struttrain.com . well this thing makes me sleepy you have a great nite. 2tired2type
At 4:02pm on October 6, 2009, Rob Bixler said…
sorry it took me so long to answer you about the roomie thing . i am the pantera guy from DS 2tired2type. ROCK ON Kelly P.
At 8:17am on October 1, 2009, Rob Bixler said…
osa is obstructive sleep apena.
hope you and your roomate , have solved you your house cleaning issues, ha ha
have a good day. at work gotta go . rob
At 4:32pm on September 23, 2009, Saraiah Naps said…
Hey Kelly - I hope things are getting better lately - any luck in getting up in the morning? I've had to plug in my Sonic Boom bed shaker and get a Sonic Boom clock with two alarms, because I keep sleeping waaaayyy too late. Hope things are looking up!

Saraiah
At 6:25pm on August 26, 2009, Kelly P said…
Don’t You Think I Wish I Could?

You wouldn't ask a deaf person why they can't hear,
or tell them it's their fault for not listening properly.

You wouldn't tell a blind person they should try opening their eyes a bit wider,
because there's no such thing as blindness,
they're just making it up.
You can see, so why can't they?

You wouldn't tell someone in a wheelchair they should put more effort in,
that they could walk if they weren't so lazy.

So don't ask me why I don't just try harder to stay awake.
Don't ask me why I can't wake up in the morning,
am I lazy or what?

Don't tell me I could stay awake if I really wanted to,
because you can, so why can't I?

Don’t you think I wish I could?
 
 

Latest Activity

Michelle added a discussion
I recently found Xyrem and it is the only sleep aid that works for me consistantly. I know that it is prescribed for narcolepsy but many with ME/CFS are now using it as well. Mr Doctor prescribed the free sample and now I am looking patient assist...
21 hours ago
oh i know i just went to see a new doc and he wants me to change all my meds and only gave me 20 pills of 5mg ambien for 2 months, he was a jerk and so i will fire him and look else where. it took me a long time to even start to sleep now this new...
yesterday
I've noticed people have mixed feelings about Ambien...I'm one of them. One time I took it, and was out for a good 8 hours...no problem. My mother had it, and it only worked for 4 hours for her. My Dad (since deceased) had Sonata, and since I'd lo...
yesterday
I still haven't found the right med(s)...or I'll become immune to the effects, and need to figure something else out! It's exhausting! Then someone will tell me about something that works for them...I'll ask a few questions about side effects and ...
yesterday
i am having trouble with the ambien not working but i dont know of anything else that has worked on me i been on so many things!!
yesterday
i am the same way . i had a nervous breakdown 9 years ago now and i have had to be on 1 mg. lor. and 5 mg. plus seraqual. i hate it but if i dont take it i do not sleep. i wantthe sleep not the pills but i dont know of any other way to get sleep.i...
yesterday
i always knew that i good 8 hours of night sleep will help to to feel better and to look better that why sleep 8 hours is so important good sleeping habits.
on Wednesday
what does xyrem do? does it make you go to sleep and then help you wake up
November 21

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