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Narcolepsy

Saw groups for insomnia and other sleep disorders...we needed a group for those of us w/ Narcolepsy!!! Come talk, share stories, share info, help, vent, whatever!!!

Members: 19
Latest Activity: 9 hours ago

Discussion Forum

Donna Talarico

Xyrem? 5 Replies

Started by Donna Talarico. Last reply by Kelly P Dec 15.

mari underwood

HELP ME---I CANT WAKE UP IN THE MORNING 20 Replies

Started by mari underwood. Last reply by mari underwood Nov 20.

Kelly P

CHECK IT OUT!!! 4 Replies

Started by Kelly P. Last reply by Kelly P Oct 1.

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Kelly P Comment by Kelly P on December 15, 2009 at 10:21am
hiiii audra!!!! youre welcome & thank youu :)
I can say for mee, nuvigil is better... provigil only worked 3 days for mee...
i was supposed to start xyrem but couldnt ... lil problem (unrelated to narcolepsy) but that's "weird" that smokin makes youu zombie out b/c i tell ppl i know its really bad to smoke but at times, smokin helps mee stay awake!!! LOL i have not heard anyone else say that about smokin yet...humph.
hope all is well, good luck w/. everythin !!! & thnxx for joining :)

xoxo
Audra Forler Comment by Audra Forler on November 19, 2009 at 4:47pm
Well when I take the Nuvigil sometimes it helps me to stay awake but like today i just sleep right through it so i still have some adderall left so I just took it to help me to stay awake. Every morning I have to get up to get my kids ready for school, and half the time I can not wake up, thank God my mother is here to get them ready or they would not go to school half the time. Even though she gets mad because she dosent understand. Do you get real sleepy after you smoke a cigarette if you even smoke. Every morning or if I have not had any meds I almost zombie out everytime I smoke a cigarette.
Donna Talarico Comment by Donna Talarico on November 18, 2009 at 10:17pm
Hi Audra! I never had Nuvigil and hadn't heard of it until I started trying to find others. I am on Provigil and it didn't work the greatest for me, but my main issue is with waking, so the addition of Xyrem -- only started last week - has been a nice combo. I can't say if Provigil is better than the Nuvigil though. What do you wish the Nuvigil did better, or what are you still have issues with? Maybe we can share our experiences and then see if we have anything similar and what helped us the best.
Audra Forler Comment by Audra Forler on November 18, 2009 at 9:44pm
Kelly P thanks so much for this awesome page...I have just joined and I already feel less alone
Audra Forler Comment by Audra Forler on November 18, 2009 at 9:30pm
Hello everyone...so I see that everyone is talking about the drug Xyrem...is it better that Nuvigil...or is Provigil better...I really am not having that much sucess with Nuvigil
Donna Talarico Comment by Donna Talarico on November 16, 2009 at 10:55pm
Hi Scott! Thanks for following me on Twitter. Glad you joined this group, too. Have you asked your doctor for samples? My co-pay is a little more than I'd like it to be, so he gives me samples to stretch further between refills. But I know without anything, it's probably a lot more. Surprisingly, my co-pay for Provigil is more than my Xyrem. I, too, am getting better results with Xyrem combined with Provigil, but it's still new to me, so we'll see.
Scott Kirkpatrick Comment by Scott Kirkpatrick on November 16, 2009 at 10:32pm
I used Provigil for about a year and it changed my life. Then I lost my insurance and I lost my meds. Now I just deal.
Kelly P Comment by Kelly P on November 12, 2009 at 2:53pm
provigil worked 3 days for mee. Nuvigil seemed to last a lil longer & be the same thing but then it had no effect.... it wasnt until i started takin effexor w/ the nuvigil it seems to be more effective & lastin longer than other meds.
idk if thatll help ya at all lol.. have a good day
xoxo
Kath Comment by Kath on November 10, 2009 at 6:44pm
How does Nuvigil compare to Provigil?
Has anybody tried both?
I tend to get resistant to Provigil after long term use
Is Nuvigil more sustainable?
Bryan Yuncker Comment by Bryan Yuncker on November 9, 2009 at 8:25pm
Yeh they keep the monkey up for like 36 hours by using load music and stuff. Yeah N is a weird disease most people think, that we just sleep too much, so they think its weird that were always tired. Basically our Brain doesn't process sleep right, im not gonna get into the science of it all, but basically sleeping doesn't work for us. Even when you sleep your still sleep deprieved
 

Members (19)

Kelly P mari underwood Audra Forler Kath Donna Talarico Bryan Yuncker Rob Bixler Maria Ceresia Ry Rob Finkle J C Toni Toothaker Scott Kirkpatrick Timothy Scott Daniel Gourley NarCat Sandi Miller Ervene Hollimon Eva
 
 

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roger jadosz I want to learn about effects Xyrem users are having
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Karl added a discussion
I recently had to switch health insurance (job loss). The only health insurance I could afford was to be on my wife's. Unfortunately, the prescription plan isn't very good. My provigil prescription (400mg a day) now costs me $177 a month! This after…
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Doctors are the worst patients in this arena. The average family physician sleeps only 4 to 5 hours per day.
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