Narcolepsy

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Comment by Audra Forler on November 19, 2009 at 4:47pm

Well when I take the Nuvigil sometimes it helps me to stay awake but like today i just sleep right through it so i still have some adderall left so I just took it to help me to stay awake. Every morning I have to get up to get my kids ready for school, and half the time I can not wake up, thank God my mother is here to get them ready or they would not go to school half the time. Even though she gets mad because she dosent understand. Do you get real sleepy after you smoke a cigarette if you even smoke. Every morning or if I have not had any meds I almost zombie out everytime I smoke a cigarette.

Comment by Donna Talarico on November 18, 2009 at 10:17pm

Hi Audra! I never had Nuvigil and hadn't heard of it until I started trying to find others. I am on Provigil and it didn't work the greatest for me, but my main issue is with waking, so the addition of Xyrem -- only started last week - has been a nice combo. I can't say if Provigil is better than the Nuvigil though. What do you wish the Nuvigil did better, or what are you still have issues with? Maybe we can share our experiences and then see if we have anything similar and what helped us the best.

Comment by Audra Forler on November 18, 2009 at 9:44pm

Kelly P thanks so much for this awesome page...I have just joined and I already feel less alone

Comment by Audra Forler on November 18, 2009 at 9:30pm

Hello everyone...so I see that everyone is talking about the drug Xyrem...is it better that Nuvigil...or is Provigil better...I really am not having that much sucess with Nuvigil

Comment by Donna Talarico on November 16, 2009 at 10:55pm

Hi Scott! Thanks for following me on Twitter. Glad you joined this group, too. Have you asked your doctor for samples? My co-pay is a little more than I'd like it to be, so he gives me samples to stretch further between refills. But I know without anything, it's probably a lot more. Surprisingly, my co-pay for Provigil is more than my Xyrem. I, too, am getting better results with Xyrem combined with Provigil, but it's still new to me, so we'll see.

Comment by Scott Kirkpatrick on November 16, 2009 at 10:32pm

I used Provigil for about a year and it changed my life. Then I lost my insurance and I lost my meds. Now I just deal.

Comment by Kelly P on November 12, 2009 at 2:53pm

provigil worked 3 days for mee. Nuvigil seemed to last a lil longer & be the same thing but then it had no effect.... it wasnt until i started takin effexor w/ the nuvigil it seems to be more effective & lastin longer than other meds.
idk if thatll help ya at all lol.. have a good day
xoxo

Comment by Kath on November 10, 2009 at 6:44pm

How does Nuvigil compare to Provigil?
Has anybody tried both?
I tend to get resistant to Provigil after long term use
Is Nuvigil more sustainable?

Comment by Bryan Yuncker on November 9, 2009 at 8:25pm

Yeh they keep the monkey up for like 36 hours by using load music and stuff. Yeah N is a weird disease most people think, that we just sleep too much, so they think its weird that were always tired. Basically our Brain doesn't process sleep right, im not gonna get into the science of it all, but basically sleeping doesn't work for us. Even when you sleep your still sleep deprieved

Comment by Kelly P on October 22, 2009 at 5:46am

Hiii Bryan ! ! ! thank youu much for the info. & links ! ! !

i didnt click the links b/c its sooo late & i cant read anymore than a small paragraph.lol....i will def. take a look tom. (i hope). I DID read your 'lil cliff notes' (lol) on them though.... it doesn't sound right, kinda???

maybe im just too exhausted/delirious to even attempt to think...lol...but, it wasn't makin TOO much sense to mee.....
i'll re-read it all, including the links & what they say there...AND then, i'll write another comment about it...

but, i mean... monkeys who were sleep deprived for days... did they NOT sleep AT ALL? ((i mean i get sleep... i don't wake up durin the night at all...once i hit a pillow, im asleep, im out...lol))

Monkeys w/out sleep....cog. slower((umm.no, duh. LOL...that shoulda been a given,lol)) ...then after using the nasal spray....
BAM!!!!A FULLY rested FULLY awake monkey brain!!!!ready to rock -N- roll !!! hahhahahah!!* * Sorry, don't take ANY offense to my
smart-ass-ed-ness LOL.... it's all in good fun & for a smile:)
and maybe b/c i havent slept yet....im a lil delirious/giddy. LOL.

Serious, i appreciate youu findin & gettin that info! i am strugglin ALOT. my life isnt too great right now..i'm not doin that good. i do not like livin like this everyday. it's makin mee very sad, disappointed, frustrated, angry..etc etc.

i doesnt matter if i sleep 0 or 14 hrs...i still feel the same way, shit. i still strugglin to stay awake durin the day...i still fight & push thru exhaustion to at least do 1 thing im supposed to after work, at home...

im gettin slower, wanderin, forgettin, im takin forever w/everythin, im not finishin things, im not completed things i start, i feel like i have super extreme a.d.h.d. .. sometimes i talk like an idiot i forget words, stutter, stop talkin w/out finishin my sentence, or start talkin then 1/2 way just mumble -or-make noises .. ( noises like, uhh. umm. hmmm.)..

i cant think cant concentrate cant focus cant pay attention cant organize cant get my shit figured out & situated. i just cant get my shit together.
i cant get movin in the AM, i take forever.

I'm already scared to sleep b/c i know there's a very good chance i wont wake up.. then wake up bt 10am-4pm when i should be at work, 1/2way thru work, or finishin work. now, im gettin scared to eat !!! b/c for SOME reason..i cant control my N AFTER i eat ...fallin sleep, the beyond extreme & overwhelming exhaustion, my C... !!! it wasn't THISSS bad before, it's like 50 x's worse in that area.

So0oo0ooo....
"Kelly" (lol) is over-consuming coffee, red bull/monster energy drinks, her Nuvigil med. & her 2 diff. kinds of stimulant medication. (adderall & ritalin).... i use extreme, unbelievable amounts of all 4 things...

..i'm eatin less ...and less...

My sleep... all fucked up now... used to be on a sched ...they say that works huh ..go to bed & wake up at the same time every nite. OK. yeaaaaa, NO... don't work. not for mee. Now, if im scared / feel like i wont wake up for work, ill force myself to stay awake all nite..i dont sleep , at all. when i do, i dont wake up for shit.

..* i really, really, really. need help. from someone. with anythin.i dunno what else to do. my life has been destroyed, its nothing. my life suxx rite now, alot. ive lost ALMOST everythin. i have NO life. not anymore...*


idk what to do.(that works!) where to go.(who will listen! TRY to help!) how to help myself??? idk anymore???

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