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Narcolepsy (18)

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Narcoleptics... where are you? I'm interested in talking with other people who have been diagnosed with narcolepsy because I have been recently diagnosed (thankfully I ... Started by Ryan Westwood	12	Nov 12 Reply by Michele Blazina
Saturday Nov 14: People With Narcolepsy & Hypersomnia Support Group meets in Wash DC People with Narcolepsy and Hypersomnia Support Group of the Greater Washington DC Area Saturday November 14th, 2009 2:30pm - 5:15pm Mt... Started by Saraiah Naps	0	Nov 1
Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 10/25/09 The third meeting of the People with Narcolepsy & Hypersomnia of the Greater Washington DC Area Support Group will be this coming Sun... Started by Saraiah Naps	2	Oct 26 Reply by Saraiah Naps
I CANT WAKE UP! no matter what! please help! Hi everyone !!! i just found this site somehow tonite. So, i'm new here =) Anyways... Soo... I seriously have 3 alarms... i also have ano... Started by Kelly P	11	Oct 22 Reply by Kelly P
Am I using my sleeping problems as an excuse to withdrawl? Hi there. I was diagnosed with narcolepsy in 2008. I would have what I call "a mild case" in that I do not experience cataplexy, and I al... Started by lauren	0	Oct 22
Greater Washington DC Area Support Group for People with Narcolepsy meets Sunday 9/27/09 Greater Washington DC Area People with Narcolepsy Support Group Meeting People with Narcolepsy, and their Partners, Children, Family, an... Started by Saraiah Naps	0	Sep 23
Many great sources of information for People with Narcolepsy (PWN) Reading over many of the posts here, I am aware of such desperation for so many. I've been there as recently as 4 days ago. Below are the... Started by Saraiah Naps	0	Sep 17
How to Tell a Potential Employer? Greetings! All those who have been laid off because of the wonderful financial climate we are living in! I was wondering, has anyone been... Started by Stephanie Warden	1	Sep 7 Reply by Kath
New Narcolepsy Foundation Wake Up Narcolepsy, Inc. is a Massachusetts 501©(3) non-profit foundation committed to educating others about and finding a cure for narc... Started by Wake Up Narcolepsy	0	Aug 19
narcolepsy episodes i am just wondering is there anyone else out there who deals reality vs. a dream , there are times that i wake up out of a nap and i have... Started by normaree harris-lee	5	Aug 7 Reply by kim w.

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Latest Activity

Michelle added a discussion

Patient assistance programs for Xyrem

I recently found Xyrem and it is the only sleep aid that works for me consistantly. I know that it is prescribed for narcolepsy but many with ME/CFS are now using it as well. Mr Doctor prescribed the free sample and now I am looking patient assist...

20 hours ago

mavisj stone replied to Sleepless in Tennessee's discussion 'Cannot Sleep Without Sleep Aids-Any Help?'

oh i know i just went to see a new doc and he wants me to change all my meds and only gave me 20 pills of 5mg ambien for 2 months, he was a jerk and so i will fire him and look else where. it took me a long time to even start to sleep now this new...

yesterday

Marcia Elizabet replied to Sleepless in Tennessee's discussion 'Cannot Sleep Without Sleep Aids-Any Help?'

I've noticed people have mixed feelings about Ambien...I'm one of them. One time I took it, and was out for a good 8 hours...no problem. My mother had it, and it only worked for 4 hours for her. My Dad (since deceased) had Sonata, and since I'd lo...

yesterday

Marcia Elizabet replied to Sleepless in Tennessee's discussion 'Cannot Sleep Without Sleep Aids-Any Help?'

I still haven't found the right med(s)...or I'll become immune to the effects, and need to figure something else out! It's exhausting! Then someone will tell me about something that works for them...I'll ask a few questions about side effects and ...

yesterday

mavisj stone replied to Sleepless in Tennessee's discussion 'Cannot Sleep Without Sleep Aids-Any Help?'

i am having trouble with the ambien not working but i dont know of anything else that has worked on me i been on so many things!!

yesterday

mavisj stone replied to Sleepless in Tennessee's discussion 'Cannot Sleep Without Sleep Aids-Any Help?'

i am the same way . i had a nervous breakdown 9 years ago now and i have had to be on 1 mg. lor. and 5 mg. plus seraqual. i hate it but if i dont take it i do not sleep. i wantthe sleep not the pills but i dont know of any other way to get sleep.i...

yesterday

henry commented on SpeedSleep's blog post '15 Health Benefits of Regular Sleep'

i always knew that i good 8 hours of night sleep will help to to feel better and to look better that why sleep 8 hours is so important good sleeping habits.

on Wednesday

Audra Forler replied to Donna Talarico's discussion 'Xyrem?' in the group Narcolepsy

what does xyrem do? does it make you go to sleep and then help you wake up

November 21

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